A Silent Killer: My Father’s Battle with Sepsis

My father was a remarkable man—a hardworking, honest soul with a quick wit and a cheeky grin. He had a deep love for Africa, its breathtaking tapestry of diverse landscapes, where the stillness of the wilderness is punctuated by the vibrant life that thrives within it.  He marvelled openly at each breathtaking golden sunrise and sunset that painted our sky.   His respect for the continent and its people was profound; he spoke several indigenous African languages, bridging cultures and forming lasting connections with those around him. His passion for Africa shaped my love for this land, instilling in me the values of kindness and understanding.

Dad navigated the challenges of celiac disease from his early 50's.  During his golden years and towards the end of his life he and my mum often attributed his discomfort and frequent flare-ups to accidental gluten ingestion.  He believed he could manage this condition, unaware that something far more sinister was quietly developing.   I was only made aware of the cancer after my father’s surgery and by then sepsis had already killed him.

In early September 2023, amidst my all-consuming career that often overshadows other aspects of my life, I took my father to our general practitioner.  After a thorough examination, she diagnosed an intestinal obstruction and urgently referred us to a surgeon at our local hospital.  Little did we know that this journey marked the beginning of a nightmare we couldn’t have anticipated.

 Upon arriving at the hospital, the resident surgeon confirmed the need for surgery, explaining that my father would require an overnight stay for bowel preparation.   We stayed with Dad until the end of the late evening visiting hours and left him in what we thought were capable hands, reassured that he seemed stable, albeit connected to a drip for pain and dehydration.   Unbeknownst to us my father’s health took a dramatic turn for the worse during the night and it wasn’t until I received a call the following morning that I learned he had been moved to the ICU due to a dangerously high fever of nearly 40°C. Panic gripped me as I rushed to the hospital, my heart racing with dread.

 When I arrived in the ICU, I was met with a sight that will haunt me forever. My father was shaking uncontrollably, his face a mask of pain and fear. I rushed to his side, tried to find out from the ICU nursing staff what was going on - no one would give me an honest answer.  He was in agony, the blood pressure monitor wrapped around his upper arm caused immense pain.   When the nursing staff turned him on his side he yelled out in agony.  All I could do for him was hold the oxygen mask over his mouth away from nasogastric (NG) tube and dab the tears from his eyes.   I desperately tried to remain calm for him.  I talked him through his laboured breathing. It was an agonizing moment when he mustered the strength to tell me he was going to die.  I will never forget those words...

“Breathe, Dad,” I urged, my voice trembling. “You can do this.”   I watched him, his hands violently shaking, his eyes closed he fumbled and managed to find my wrist and pinch my skin, his silent way of saying, “No, my girl, I’m dying.”

The helplessness was devastating as I stood by, watching sepsis take hold of him, each breath growing more laboured, each moment more excruciating. Sepsis was now not just a medical term - it had become a monstrous reality, ravaging my father’s body while I was left in the dark as to its severity.

For six agonizing hours, I stood by his side, powerless to stop the inevitable. The medical staff would not prioritise his surgery, and by the time they finally operated, sepsis had already claimed my dad.  My father was grappling with a silent killer that had gone unrecognized until it was far too late.

My father’s passing was not just a tragic loss; it was a preventable tragedy. The lack of urgency from the healthcare providers left us vulnerable and unprepared for the horror that unfolded before our eyes.

Sepsis is a global health crisis.  It affects around 49 million people every year, at least 11 million die – one death every 2.8 seconds.  Depending on country, mortality varies between 15 and more than 50 %.   Many surviving patients suffer from the consequences of sepsis for the rest of their lives.  

With nearly 17 million cases and 4 million deaths occurring each year in sub-Saharan Africa (sSA), sepsis-attributable morbidity and mortality is higher in sSA than in any other world region. Everybody in Africa deserves a chance to survive sepsis. 

Collective and concerted action is urgently needed to save lives and avoid deaths from sepsis - African Governments and institutions should lead these efforts.   At the very least, basic infection prevention control and early response should be prioritised.  

In memory of my father, all those that have lost their lives to this monster and all those that have survived - let us shine a light on sepsis, advocate for vigilance, communication, and urgent action.  No one should endure such a fate.

My dear dad, who taught me so much:   Brian Hayes 27 December 1947 – 7 September 2023

 

Robyn Hayes Badenhorst

Daughter, Wife, Friend, and Humanitarian

Head of Division:  Supporting Health Initiatives, A Division of Wits Health Consortium (Pty) Ltd


The article above was written by Robyn Hayes Badenhorst and is shared here with her explicit consent. The views in the article do not necessarily represent those of the Global Sepsis Alliance. They are not intended or implied to be a substitute for professional medical advice. The whole team here at the Global Sepsis Alliance and World Sepsis Day wishes to thank Robyn for sharing her father’s story and for fighting to raise awareness for sepsis.

Katja Couball
Global Sepsis Alliance Joins WHO’s Acute Care Action Network (ACAN)

We are thrilled to announce that the Global Sepsis Alliance (GSA) has been selected to join the Acute Care Action Network (ACAN) of the World Health Organization in July 2024. Prof. Tex Kissoon, GSA President, and Dr. Mariam Jashi, CEO of the  Global Sepsis Alliance, attended the first in-person convening of the network at WHO Headquarters in Geneva on October 17-18, 2024.

The ACAN is a flagship initiative established after the approval of the resolution at the seventy-sixth World Health Assembly to strengthen access to quality emergency, critical, and operative (ECO) care services worldwide. The network aims to enhance the delivery of acute care, particularly in low—and middle-income countries (LMICs), by disseminating and evaluating WHO tools and resources.

Dr. Teri Reynolds leads the WHO’s work on the ECO strategy in the Integrated Health Services Department, which is under the leadership of Dr. Rudi Eggers.

The inclusion of the Global Sepsis Alliance in the ACAN network underscores the increasing recognition of sepsis as a critical condition to be addressed at the global level and highlights the significant role that GSA plays in advancing the global health agenda.

The GSA is grateful to the WHO for the unique opportunity to present the 2030 Global Agenda for Sepsis to over 40 member organizations of ACAN during the meeting and to invite ACAN members to join the global fight against Sepsis by endorsing the document and/or exploring joint partnership opportunities.

Prof. Kissoon and Dr. Jashi were especially delighted to see, that Mr. Tore Lærdal, Executive Director and donor of the Lærdal Foundation in his presentation on the priority health investments highlighted the global burden of sepsis and the 2030 Global Agenda for Sepsis launched by the Global Sepsis Alliance in September 2024. Mr. Lærdal emphasized that sepsis, as well as Injury, remain the leading causes of death that are still inadequately addressed by the Global Burden of Disease studies or the latest Lancet Commission’s Report on 2050 global health investments.


We will continue to keep our member organizations and the broader community updated on our involvement with ACAN and the progress we make together. This milestone is not just a gain for GSA, but also a significant step forward in the global fight against sepsis.

Dr. Mariam Jashi, CEO of the Global Sepsis Alliance, expressed her excitement about this new opportunity:

The Global Sepsis Alliance is honored to be accepted as a new member of WHO’s Acute Care Action Network. We are committed to actively engaging in ACAN efforts to strengthen ECO services, including improving the quality of sepsis care. This collaboration is pivotal for advancing our 2030 Global Agenda for Sepsis.
— Dr. Mariam Jashi, CEO, Global Sepsis Alliance
Being part of ACAN is a testament to the critical importance of sepsis on the global health stage. This collaboration will allow us to work closely with WHO and other partners to ensure that the advancements in sepsis care reach those who need it most, particularly in resource-limited settings.
— Prof. Tex Kissoon, President, Global Sepsis Alliance
Marvin Zick
Announcing the Launch of the GSA Fellowship

We are thrilled to announce the launch of the GSA Fellowship, a new initiative by the Global Sepsis Alliance, aimed at fostering global collaboration, education, and leadership in the fight against sepsis. The Fellowship ushers in an exciting chapter of growth and opportunity for individuals dedicated to combating this critical health issue.

The 2-year GSA Fellowship is designed with several key objectives in mind:

  • Broadening Multidisciplinary & Multi-Regional Involvement:

    • The program seeks to expand the scope of participation within GSA, welcoming experts from a variety of fields and regions to enrich the organization’s efforts.

  • Engaging Fellows in GSA Programs & Regional Sepsis Alliances (RSAs):

    • Fellows will actively participate in existing initiatives and programs, working closely with GSA and RSAs to drive meaningful change.

  • Creating Learning Opportunities with Global Sepsis Experts:

    • Through the Fellowship, participants will engage with leading sepsis experts from around the world, gaining valuable insights and knowledge to advance their careers and make a tangible impact.

  • Nurturing Potential for Regional, National, and International Impact:

    • The GSA Fellowship aims to empower Fellows to make a difference not only within their local communities but also on a national and international scale, promoting best practices and innovative approaches to sepsis care.

The GSA Fellowship replaces the previous GSA Advance Program. Many of the current GSA Advance Members will transition into the new Fellowship to build on the accomplishments and momentum of the past.

The next application cycle for the GSA Fellowship will open in March 2025, with the next term set to officially begin in August 2025. We encourage individuals from diverse disciplines and regions who are passionate about tackling sepsis to consider applying for this unique opportunity starting in March 2025.

The GSA Fellowship is chaired by Imrana Malik, with Maha Aljuaid serving as her co-chair and Aamir Siddiqui as program coordinator.

Stay tuned for further updates and join us in celebrating the launch of the GSA Fellowship as we take another significant step forward in the global fight against sepsis.

Marvin Zick
Celebrating Prof. Johan Rockström: Virchow Prize Laureate 2024

The team at the Global Sepsis Alliance (GSA) would like to extend their sincere congratulations to the esteemed Laureate of the Virchow Prize 2024 Prof. Johan Rockström for the historic recognition of his work. We are especially grateful for his support of the new 2030 Global Agenda for Sepsis.

This occasion is shared with dearest friends and colleagues Prof. Konrad Reinhart, Founding President of the Global Sepsis Alliance and Member of the German National Academy of Sciences Leopoldina, and Hon. Keith Martin MD, PC - Former Member of Parliament of Canada and Executive Director of Consortium of Universities for Global Health.

Together, we stand committed to advancing global health and ensuring that sepsis remains a top priority on the world stage.

Katja Couball
The Lancet Publishes Sepsis Survivors’ Call to European Leaders

The Lancet published the Sepsis Survivor’s call to EU leaders to develop the European Sepsis Plan as the follow-up to the September 9 Sepsis patients summit convened in Paris by Sepsis Stronger Together consortium in partnership with the Global Sepsis Alliance and the European Sepsis Alliance.

The September 9 summit “Revealing the Burden of Sepsis” convened on the occasion of the 2024 World Sepsis Day, brought together Sepsis survivors and grieving families from all over Europe.

The summit focused on sharing good practices across Europe, empowering and creating awareness, inspiring health professionals, and conquering sepsis and its long-term consequences.  

Dr. Mariam Jashi, CEO of the Global Sepsis Alliance, and Simone Mancini, GSA Coordinator of the Regional Sepsis Alliances, joined the event. Mariam Jashi delivered a presentation on the 2030 Global Agenda for Sepsis in the opening session and highlighted the urgency of action against sepsis, at both the EU and global level.

Paris Declaration, a Call to Action to EU public health authorities demanding the development of a European sepsis plan was issued as an outcome document of the event, covering the following 8 recommendations:   

  1. Early detection and treatment

  2. Comprehensive patient information

  3. Proper documentation and registration

  4. Clinical pathway development

  5. National public health campaigns

  6. Educational programs

  7. Universal access to sepsis management

  8. Investments in sepsis research

The Paris Declaration and its 8 recommendations complement the 2030 Global Agenda for Sepsis, as sepsis patients call upon the EU leaders to urgently prioritize Sepsis, accounting for 680,000 deaths in the region every year.

Sepsis claims more lives annually than prostate and breast cancer and HIV/AIDS combined. So why not prioritize this medical emergency and global health threat? Infectious diseases and sepsis do not recognize borders; European countries face similar challenges, so why not share experiences and develop an action plan on a European level?


**‘Revealing the Burden of Sepsis’** was fully patient-driven: patients, grieving families, and patient organizations united in the Sepsis Stronger Together consortium, took the lead. The summit was supported by the Global Sepsis Alliance (GSA), the European Sepsis Alliances (ESA), FHU Sepsis, IHU PROMETHEUS, and 101Fund – an impressive example of patient participation, rarely seen before.

For more information on the Call to Action, please contact Sepsis Stronger Together or check out the Lancet publication.

Marvin Zick
Extended to October 21 – Send Us Your World Sepsis Day Event Pictures

Update Oct 7, 2024: We have extended the deadline to October 21, 2024, end of day. Please send us your events and pictures by then. Thanks!


Original article:

Last Friday, September 13, we celebrated World Sepsis Day, and it was a huge success! Across the globe, countless events helped raise awareness about sepsis, the most preventable cause of death. Your participation made a real impact, and we can’t thank you enough for being a part of this life-saving movement.

Now, it’s time to showcase your efforts – we’ll highlight all the incredible events on our website, the 2024 WSD Event Poster, and we have a couple of other ideas as well...

Upload your event now – it only takes a minute. But hurry, the form closes on October 6, so make sure to submit before then. Let’s continue spreading the word and saving lives together.

If you haven’t organized your own event for WSD, it’s not too late to participate via our virtual photo booth…



The form above requires JavaScript – if you are having trouble seeing/accessing the form, please try using a different browser, device, or connection. For further issues, please contact us.

Marvin Zick
Virchow-ESMT Lecture “Health and Sustainability for Thriving Futures” – Friday, Oct 11, 2024

The Virchow Foundation – a long-time strategic partner of the Global Sepsis Alliance and the World Sepsis Day Movement – and the European School of Management and Technology (ESMT Berlin) are delighted to host the distinguished Virchow Lectures in honor of Lucy Gilson and Johan Rockström, the Virchow Prize 2024 Laureates. They will explore the critical and timely topic of holistic and systems-based approaches to safeguarding “Health for All” and the interconnectedness of health with the different levels of health systems, the UN Sustainable Development Goals (SDGs), and the planetary boundaries of environmental sustainability, highlighting the importance of integrated strategies to address complex global challenges towards our common goal of attaining SDG3 “Good Health and Well-being.”

The event – including the lectures of the Virchow Prize 2024 Laureates and the following panel discussion – will be live-streamed for free, requiring only a short registration here. To participate in person in Berlin, please register via this link.

  • Established by the non-profit Virchow Foundation, the Virchow Prize is an international award annually celebrated in Berlin and endowed with €500,000. Rudolf Virchow, the inspiration and namesake of the prize, is a symbol and role model for the required holistic approaches to improve health for all, thereby providing an example of global responsibility for future generations. In this spirit, the Prize, deeply rooted in the highest-quality research and humanistic values, intends to further strengthen our efforts to a better future. Individuals and their work embody the spirit of the United Nations 2030 Agenda Sustainable Development Goals, specifically addressing SDG3 “Good Health and Well-being”.

  • Founded in 2002 by 25 leading global companies, ESMT Berlin offers master’s, MBA, and PhD programs, as well as executive education across its campus in Berlin, various locations around the world, online, and in an online blended format. Additionally, the international business school provides an interdisciplinary platform for discourse between politics, business, and academia. ESMT is a non-profit private institution of higher education, accredited by AACSB, AMBA, EQUIS, and FIBAA, and is committed to diversity, equity, and inclusion across all its activities and communities.

Marvin Zick
SEPSIS Bill Introduced in US Senate

On September 11, 2024, Senate Majority Leader Chuck Schumer, alongside Senators Susan Collins and Bob Casey, introduced the bipartisan SEPSIS (Securing Enhanced Programs, Systems and Initiatives for Sepsis) Act to the US Senate.

This legislation aims to reduce sepsis-related deaths by directing the Centers for Disease Control and Prevention (CDC) to expand their dedicated efforts on sepsis prevention, building on their ongoing work to combat this deadly condition. The bill builds on the success of Rory’s Regulations, a life-saving initiative in New York State.

The Global Sepsis Alliance wishes to congratulate Orlaith and Ciaran Staunton and their team at END SEPSIS for their continuous leadership and vision and for repeatedly putting sepsis in front of policymakers in the US and beyond.

Sepsis is a devastating medical condition, which unjustly claims the lives of hundreds of thousands of Americans each year. The true tragedy is that many of these fatalities are preventable if there is early enough detection. The federal government must continue to bring more awareness and research to combat this ruinous condition and save lives. I sincerely thank the Stauntons, who faced an unimaginable loss when their son Rory – a 12-year-old from Queens – died from sepsis a decade ago. They have turned their profound suffering into tangible action so that hopefully no parent or family has to experience the same pain.
— Chuck Schumer, Senate Majority Leader, United States
We congratulate Senator Schumer for this lifesaving bill, which will help prevent hundreds of thousands of unnecessary deaths from sepsis. No one has worked harder, given more of his time, and helped bring profound change in the battle against sepsis than the beloved senator from New York. Since our cherished son Rory died from sepsis 12 years ago, we have devoted our lives to ensuring there will be no more Rory Staunton cases, no families shattered, no parents weeping, no brothers and sisters bereft, no families left to face a thousand lonely nights because of death from a preventable condition. Thanks to this bill, we have taken an enormous step forward, ensuring the federal battle to end sepsis is now underway. As a child, Rory liked nothing better than helping people and lifting them up. He is still lifting us all up now and urging us to fight even harder. Our promise to him is that we will.
— Ciaran and Orlaith Staunton, Founders, END SEPSIS

The SEPSIS Act would task the CDC with dedicated sepsis work, building on their ongoing efforts to reduce the burden of sepsis through the Hospital Sepsis Program Core Elements.

The CDC’s work will include:
• An education campaign about addressing sepsis in hospitals
• Improving data collection on pediatric sepsis,
• Sharing information with HHS on data collection, including CMS on sepsis quality measures and
• Development and implementation of a sepsis outcome measure.

The SEPSIS Act also requires a report on developing and implementing a sepsis outcome measure and a Congressional briefing on CDC’s sepsis activities.

Lastly, the SEPSIS Act includes a voluntary recognition program for hospitals that maintain or improve effective sepsis programs over time.

Marvin Zick